Tag Archives: funding

EDS: How You Can Help

Ehlers-Danlos syndrome threatens the lifestyles and lives of many people all over the world, some without even knowing they have it. In fact, the vascular form of EDS is often diagnosed upon autopsy.

EDS Network C.A.R.E.S. and EDS Today have teamed up to enter Chase Community Giving’s contest for a chance to win $250k. They are in the #1 spot as I type, but we still need all the help we can get.

Please vote for EDS Today. It takes less than a minute of your time and costs you nothing.

EDSers like myself experience dislocations of multiple joints on a daily basis, relentless and excruciating pain, deteriorating physical condition, and the constant threat of death by organ or blood vessel rupture, as well as many secondary medical problems.

And that’s just the tip of the iceberg.

EDS research is seriously underfunded. The money from this contest will go toward funding EDS research. More EDS research increases the possibility of finding a cure. I have hope that a cure will be found in my lifetime.

So, please, click that link and vote for EDS Today. Post the link to your Facebook wall, tweet it, blog about it, pass it along to everyone you know. Please help us to help them find a cure.

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