Let’s talk about doctors, shall we? I’ll leave out the good and instead focus on the bad and the ugly. Over the next few posts, I’ll be sharing what, in my opinion, makes a Dr. Nick (the malpracticing doctor from The Simpsons). These clinical catastrophes are frighteningly common and should have most patients heading for the hills. I encourage you to share your stories, opinions, and experiences, any of which might be used in future posts.
I’ll start with the simplest, yet most commonly perpetrated, blunder.
Consistently misdispronounciating my name or the name of my illness. My name is not Iona, Mona, Ramona, or Naomi, and I do not have Hurler’s syndrome. I can understand mispronouncing my name or the name of my illness the first time we meet. After that, getting my name or the name of my illness wrong just shows me that you cannot be bothered to take the time or make the effort to learn about me. If you cannot be bothered to take the time or make the effort to learn about me, then you obviously cannot be bothered to take the time or make the effort to treat me.
Now, I’ll move along to a situation that can kill a doctor-patient relationship in an instant.
Assuming that I can’t possibly know anything because I’m “just a patient.” Unfortunately, because my conditions are rare, I can’t count on my doctors to know everything, or anything, about them. This means that I do a lot of educating whenever I go to the doctor. This education, however, only works when the doctor is open to receiving it. Here’s a newsflash to many doctors: Graduating from medical school does not give you an excuse to not listen to or learn from your patients. You don’t always know what is best for every patient, and you definitely don’t know everything, so it is completely unacceptable to insist that you do. My GP wanted me to see a rheumatologist to get his opinion on how to best manage my condition. I was reluctant to go because I have yet to have an experience with a rheumatologist that could possibly qualify as decent. I wasn’t given a choice – it was see the rheumatologist or have my pain medication taken away. I saw him once before and knew he wasn’t that great, so I brought my mom with me. It made absolutely no difference. He kept asking me why I didn’t do the physical therapy he recommended (because I couldn’t) and telling me that I’d be fine if I just walked 2-3 miles every day! Mom and I tried to disagree with him as politely as we could, but to no avail. He just kept repeating himself, only LOUDER and s-l-o-w-e-r. It’s very hard to piss my mom off, but even she stood up and headed for the door before the doctor was finished berating us. He continued to spout incorrect information about EDS and how to manage it, and tried to convince me that starting pain management would be the biggest mistake I ever made. He was wrong – about everything. Doctors like this one should retire, immediately.
Be on the lookout for the next installment of Rx for Distress for even more medical mayhem.
SPEAK UP! What do doctors, nurses, or other medical “professionals” do that makes your blood boil? Share your stories and opinions and they may be used in future posts!